W08--Best Practices & Approach to Clinical Research, Including Community Engagement

Thursday, October 23, 2025

10:15 AM - 12:15 PM PDT

Location:Ballroom 1

Chair(s)

Katie Poch, BS

National Jewish Health
Julia Giancola, MSN, RN, CPN, CCRC

Boston Children's Hospital

This session will explore innovative approaches to clinical research, focusing on strategies to improve efficiency and engagement that prioritize both scientific integrity and patient-centered care. Topics include decreasing data entry time through workflow optimization, effective strategies to support remote studies, and building strong partnerships with clinical teams and community members.

Learning Objectives:

Identify at least one quality improvement project that you can implement at your site over the next year.
Describe best practices or innovative approaches to quality data entry and documentation in clinical research.
Explain the importance of research awareness and engagement between potential subjects and staff.

Presentations:

10:15 AM - 12:15 PM PDT

W08.1- Empowering Voices: The Personal Impact and Value of Community Participation in CF Research
Speaker: Felicia Reid, MS – Cystic Fibrosis Foundation
10:15 AM - 12:15 PM PDT

W08.2- Paving the way: Integrating research education into clinic to forge new partnerships
Speaker: Vanessa Marascio, MS, MPH – University of Vermont Medical Center
10:15 AM - 12:15 PM PDT

W08.3- Decreasing Cystic Fibrosis (CF) Foundation Patient Registry (CFFPR) encounter data entry time
Speaker: Sarah H. Schwartz, B.A. – The University of Texas at Austin/Ascension
10:15 AM - 12:15 PM PDT

W08.4- The Research Coordinator Recruitment Experience in LTx READY CF 2, a multicenter trial of lung transplant education
Speaker: Sierra Knapp, MPH – University of Washington
10:15 AM - 12:15 PM PDT

W08.5- Development of a consent communication framework to support values-aligned enrollment decision-making in cystic fibrosis clinical research
Speaker: Sharon McNamara, MN – Seattle Children's Hospital