Skip to main content
NACFC 2025 Main banner
Icon Legend
This session is not in your schedule.
This session is in your schedule. Click again to remove it.
Presentation Icons
Session includes an in person invitee/speaker with CF
Session includes an in person invitee/speaker with CF
Livestreamed Session
Livestreamed Session
Recorded Session
Recorded Session
Session is Ticketed (Must Register for Session through Registration)
Session is Ticketed (Must Register for Session through Registration)
Food Available for Session Attendees
Food Available for Session Attendees
Session Feedback

HEAC

SW/PSYCH
Session Type: Rapid-Fire Poster Talk

RFPT07--Topics Related to Health Equity, Cost, Access, & International Issues | Room: Theater B in the Exhibit Hall

Friday, October 24, 2025
9:00 AM - 9:50 AM PDT
Location:Theater B in the Exhibit Hall

This session explores disparities experienced by people with cystic fibrosis, with a particular focus on populations historically underrepresented in CF research. We highlight factors that impact access to care, including global inequities in access to life-saving modulator therapies. Presenters will also share interventional programs aimed at advancing equity and inclusion in CF care. Presenters will be given the opportunity to succinctly present the essence of their poster data one after another. After the session, questions can be addressed with the presenter by visiting their poster during the open Poster Hall hours

Learning Objectives:

  • Review current disparities in access to care for people with cystic fibrosis
  • Discuss potential interventions to improve newborn screening and access to CFTR modulator drugs for individuals currently struggling to access care
  • Summarize potential community interventions focused on underrepresented populations in cystic fibrosis to improve care

Presentations:

  • 9:00 AM - 9:50 AM PDT
    RFPT07.1- Housing insecurity in people with CF: Data from the COST-CF survey

    Speaker: Heather Boas, MD – Dartmouth Health Children's

  • 9:00 AM - 9:50 AM PDT
    RFPT07.2- Who’s left behind? Understanding gaps in CFTR modulator use among eligible Canadians with CF

    Speaker: Noma Abdulrahem, BSc – Cystic Fibrosis Canada

  • 9:00 AM - 9:50 AM PDT
    RFPT07.3- Assessing the effectiveness of the current CFTR modulator donation program for improving global treatment access

    Speaker: Jonathan Guo, MBBS, BSc – Imperial College London

  • 9:00 AM - 9:50 AM PDT
    RFPT07.4- Global disparities in time from marketing authorization to reimbursement for elexacaftor/tezacaftor/ivacaftor

    Speaker: Benedict Young, BSc – Imperial College London

  • 9:00 AM - 9:50 AM PDT
    RFPT07.5- Community Voice: Ten years of increasing representation and centering CF community perspectives in CF Foundation programs and research

    Speaker: Caitlin Mitchell, MPIA – CF Foundation

  • 9:00 AM - 9:50 AM PDT
    RFPT07.6- Supporting the Hispanic CF community through an expansion of CF Peer Connect

    Speaker: Claudia Rodriguez – Cystic Fibrosis Foundation

  • 9:00 AM - 9:50 AM PDT
    RFPT07.7- Uncovering health disparities: CF health outcomes of American Indian/Alaska Native individuals receiving care in Oklahoma

    Speaker: Jillian K. Landers, BS – University of Oklahoma- Tulsa School of Community Medicine

  • 9:00 AM - 9:50 AM PDT
    RFPT07.8- An assessment of disparities of the Texas Newborn Screen utilizing the Hologic 40+2 Genetic Panel

    Speaker: Savannah E. Knight, MD – Pediatric Pulmonary, Baylor College of Medicine/Texas Children's Hospital, Houston, TX, USA