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Ashley Shaver

Self

My name is Ashley Shaver. I am 45 with cystic fibrosis and was diagnosed at 3. I have a wife of 23 years and a daughter that is a freshman in high school. My dream in life is to be a part of the study for the cure, but my reasons have changed. Living to see her beginning kindergarten became a short-term goal while being there to walk her down the isle has become an expectation instead of a wish. Doing my part to make that happen, I have been a part of the study for each modulator that's become available to double deltas.

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