Lenox Hill Hospital/Northwell Health
Elinor Langfelder-Schwind, M.S., C.G.C. is a Board Certified genetic counselor with more than 25 years of experience working in adult and pediatric cystic fibrosis (CF) programs in New York City. Elinor's career in genetics began at the Ethical, Legal, and Social Implications Program of the National Center for Human Genome Research (now NHGRI) where she helped to coordinate pilot studies on assessing and implementing CF carrier screening in the general population. From that experience, she gained deep insights into the powerful role of genetics in health and society, and was inspired to pursue a career in CF genetic counseling. In keeping with a firm belief that all people with CF should have access to participation in research and innovative therapeutic clinical trials, Elinor ensures ethical conduct of research and has primary responsibility for administrative and regulatory research coordination for CF clinical research trials, including multi-center clinical trials that have led to FDA approval of ground-breaking genotype-directed therapies. Her major research interests in genetic counseling research are CF newborn screening, health disparities, and access to genetic counseling. Currently, she serves as PI of the coordinating center of the multi-site, CFF-funded project, Improving Access to CF Genetic Counselors via Telehealth (IMPACCT) aimed at developing and evaluating a centralized CF-specific genetic counseling service.
CC04--The Wild World of CF Genetics
Saturday, October 25, 2025
8:00 AM - 9:15 AM PDT